HaemBase Cymru is a data solution for haematological malignancies that accurately gathers data during a patient’s cancer treatment starting from the first clinic visit. This puts the needs of patients first, with electronic data available in real time that can be analysed to assess the impact of treatment on patient survival and quality of life.
The solution includes user interfaces for structured data collection, with functionality to create and edit haematology data sets as part of a wider electronic patient record and patient flow. It will link or import relevant data into the solution from existing clinical data sources e.g. pathology/radiology and also other relevant clinical data – diagnosis, treatment, medicines. It will also include the storage of haematology data into an NHS Wales Repository for business intelligence, analytics and reporting purposes.
NHS Wales has a long term ambition to drive Value Based Healthcare and quality haematology data capture is limited throughout Europe. The unique complexity of haematology malignancies make it data-rich and the ideal foundation for a new system for cancer patients in order to capture quality real-time data to aid improved patient treatment and outcomes, and to enhance patient quality of life.
The project has been possible thanks to an Innovative partnership between Welsh Government, NHS Wales, the Wales Cancer Network and Janssen, who provided the necessary funding and have representation in the Project Board. NHS Wales Informatics Service staff and Cardiff and Vale UHW haematology department clinicians constitute the core project team guided by Dr Ceri Bygrave, Consultant Haematologist, UHW, Cardiff as SRO.
The project reports to the Cancer Informatics Programme Board, that is overseeing the entire Cancer Informatics Programme for NHS Wales.